BH we may of turned a good corner today and hoping that will continue over Shabos

A GUT SHABOS from CHLA

We hope that Friday we will see some improvement to Elis mood and strength because until now for the most part its been mostly downhill this week. He isn’t in the mood of anything because most of the time he is extremely nauseous and is very agitated as a result. They finally have Eli on medication for the nausea around the clock instead of having to ask for it each time.

The recovery time for anyone with the flu takes a few days and we hope that’s all it will take with Eli as well. Friday will be his 5th day in the hospital this week and 15 out of the last 19 days in the hospital. Its taking its toll but beezrat hashem Eli will be up to getting out of bed which he hasn’t yet this week and get some fresh air on Friday. The DR feels that after 7 full days of antibiotics which will be Monday is when they would feel comfortable to discharge Eli.

Please have Elimelech Ben Basya in mind in all your tefilos so we can get the road to recovery of this flu to go as quick as possible.

Today was a rather long and not a fun day for Eli. He didn’t feel well most of the day and was extremely nauseous. He is very weak and not himself due to all the medications, IVs, and antibiotics he is currently taking.

Late this afternoon they informed us that Eli has the flu which for anyone isn’t good and all the more so for Eli in this situation. Because of how he is doing and the amounts of antibiotics he is on we will likely be here for a quite a few more days. Beezrat hashem the meds will all do what they are meant to do for Eli.

Hoping to have only good news in the next few days for Elimelech Ben Basya and that his condition, mood, strength only get better so he can get home and get back to schoo and. Of course a refua shelayma. Bkarov

BH today was a lot better then yesterday. Elis blood pressure stabilized and they removed the IV that helped them bring it to normal. His high fever and high heart rate BH has also been stable and good. Late this afternoon Eli was moved out of the ICU to a regular room. He is for some unexplained reason very nauseous and not in the mood of very much.

So far all blood cultures have remained negative so BH for that, however due to the fact that things weren’t good yesterday they feel they want to monitor Eli for possibly a few more days. We should have a better picture hopefully tomorrow regarding that. Eli remains very tired and weak and hasn’t recovered yet from the last 2 weeks of being inpatient for immunotherapy and this is making it harder to reach that goal.

We hope and daven that Elimelech Ben Basya will get stronger and better with every passing moment and that the fever doesn’t come back and the cultures beezrat hashem stay negative.

Today was anything but normal. Eli woke up throwing up and totally not himself. As the morning went on he didn’t look or act himself and then at about 11:30AM Eli got a fever. We took him immediately to the ER at CHLA and they put him on the regular IV antibiotics which they always do anytime there is a fever. Elis blood pressure was very low for a decent period of time and as a result they needed to get him on a IV for that to regulate. The problem is that IV can only be given in the ICU so he was brought there right away to get that started. Hopefully Eli will only stay in the ICU overnight if his blood pressure stays regular without the IV. Once the blood pressure is stable for a while IYH they will move Eli to a regular room.

BH Eli is stable and is reacting well to that IV the problem is his fever is still pretty high. The blood cultures they take which beezrat hashem will let them know if CV there is an infection or what the problem is and what treatment is necessary will be decided based on that. The results can take up to 24 hours after the blood is drawn so we will be waiting for those results.

Elis platelets were a little lower then usual also so he received a platelet transfusion as well. This all came to us as a surprise and unfortunately is somewhat normal. As a result of all this Eli will need to be inpatient for at least a few days until all the levels are back to normal and whatever the cause of all this is figured out and treated.

In the meantime please as always have Elimelech Ben Basya in mind in all your tefilos in hopes that this is nothing serious and that he will be able to go home as soon as possible.

Eli is slowly getting back to himself and its taking a little bit longer then the last few rounds which is expected. As a result he will probably not end up going to school on Monday and we will reevaluate how he’s doing to see if Tuesday is a possibility.

Monday is a scheduled DR appt to see if Elis blood levels are well enough to begin the next round of accutane.

Please as always continue davening for Elimelech Ben Basya

Although Eli was more tired then usual he had a great Shabos and we look forward to that carrying over to this week and the coming weeks.

The only thing on the schedule is a DR appt on Monday to check his blood levels to see if Eli can begin taking accutane again.

Elimelech Ben Basya lrefua shelayma bsoch shaar choley yisroel amen. A GUT VOCH

BH Eli was home before noon today and spent the remainder of the afternoon relaxing at home. He did get a visit from his rebbi Rabbi Weiner which he really enjoyed and appreciated.

We look forward to beezrat hashem a 3+ week break of inpatient treatments and watching Elimelech Ben Basya grow and regain his strength. A GUT SHABOS

Eli needed a blood transfusion this morning and it definitely helped him regain his color and some strength. As a result the immunotherapy IV started a little bit later and ended a little later but bli ayin hora went without any pauses. As of about 11PM the main IV is done for this round.

Eli enjoyed as always the visitors that came today and one that brought their son to play a game with Eli which was great. The plan is to finish off the 2nd IV and TPN in the morning hours and be home before noon. We look forward to beezrat hashem a 3+ week break until the next and final round of immunotherapy begins the first week in January.

Please as always have Elimelech Ben Basya in mind in all your tefilos. Have an easy fast.

One more day until this round is finally over. The relief Eli gets as soon as the IV is off is a beautiful sight to see as he finally gets back somewhat to himself. There are 2 IVs of immunotherapy this round one which goes continuous all week and the other one is about 10 hours a day and that’s the brutal one.

Eli bli ayin hora for the most part is as always very happy and makes the best of the situation. Beezrat hashem all will be done Friday morning at a normal hour and this will conclude round 6 of 7.

Please continue to daven for Elimelech Ben Basya that there shouldn’t ever be pain and that the treatments should do what they are meant to do which is bring Eli to a refua shelayma