Where to begin?? Eli was in Camp Simcha for 2 weeks of non stop incredible fun. The staff and program are the absolute best there is. The care, love and attention was truly amazing from day 1 until we got back in the car. His counselor, co counselor, division head, learning rebbi, head counselor, waiters, nurses and so many others were just simply incredible. Seeing some pictures and videos of Eli doing things that took so much energy which they brought out of him was beautiful.
Once again I had the privilege to go to camp to pick Eli up on Tuesday morning after the full 2 week session ended. I found out in camp that Eli penned a phrase that stuck “FOR THE SAKE OF TORAH” which Eli scrame at the end of each learning group. He made so many new friends and felt so at home it was an experience he will never forget.
Before camp we were at MSKCC to get transfusions and to see the DR. At the time we were there the DR ended up on vacation but today before we left NY he was there so we went to see him. BH the DR only had good news and good ideas for us which we need to discuss with the DR in LA but BAH Eli is now eligible for studies and treatments that not that long ago weren’t on the table at all.
This news is beyond amazing and it is only thru literally miracles that we have seen and thru all the davening that is done constantly on Eli’s behalf. We beezrat hashem hope that this only continues with even better news as each day passes.
For now the plan is to see the DR in LA Friday morning and start again on Monday-Friday chemo the same chemo Eli has been getting for many months.
We also had a great mazal that this organization called Corporate Angel Network arranged our flight home from Teterboro to Long Beach on American Express private jet. They allow children with cancer travelling to or from Dr visits to use this amazing system to avoid germs and all the hassle of flying on a commercial flight.
Please as always continue having Elimelech Ben Basya and all cholim in your tefilos.