7/16/14

I hate giving myself or Eli an Ayin Hora but today was something special. Eli woke up late because he went to sleep so late and we headed right to MSKCC where finally we were lucky and everything started and ended on time with no surprises. We got there on time by 1PM and we were out after having labs done, MIBG injections and a 30 minutes scan by 3:30. We were then met by a close friend and his family at the Central Park Zoo which Eli loved and acted like a big brother to their child.

Next it was back to Elis favorite steak house in NYC where he ate more then he’s eaten in a long while and kept all of us entertained. We then finally got back to out 5+ Star accommodations where Eli had a blast playing with our cousins. All in all I can just hope and pray that aside from the hospital part we have every day like today with the energy and humor that Eli showed today. HALEVAY VAYTER.

Thursday morning at 10AM is the big MIBG scan which will take about 2 hours. I’m not sure if there will be other appointments like a blood or platelet transfusion as well but we will find that out when we get there. IYH we will get the good results on Friday and will then learn the next phase of treatment which beezrat hashem will be MIBG therapy starting again with in patient check in on Monday.

Elimelech Ben Basya lrefua shelayma bsoch shaar choley yisroel.

Special Announcement

For the last few months a group of our close friends have been arranging to join Chai Lifelines marathon taking place in Florida on 2/2/14. They have already 12+ people just on the “team Eli” group along the many others that run for Chai Lifeline. To do so every runner goes through MONTHS of rigorous training which they have all began doing already. This is one of the bigger fundraisers for Chai Lifeline who anyone who has ever needed their services knows how vital they are when a family member is going through a illness. And for those who BH haven’t had a sick family member and beezrat hashem will never have should know that they are simply a lifeline. Always there and always thinking about what they can do to take their chesed to the next level.

Our family will forever be makir tov to them for what they have done for us and continue to do. Every runner that signs up is essentially pledging $3600 to join the CL team. Aside from the training they do they must also raise the $$. On the link below there is a team Eli page which shows how much together the team has raised but you can click on each persons name and donate directly to their pledge. We beezrat hashem hope as a family to be there together with Eli who will be pushed in a wheelchair/stroller by one of the runners during the marathon

I look at this as a insurance plan that hopefully your donation should chas vshalom never be used towards your family or anyone you know but for us its the ultimate lifeline. Again I ask that anyone that can should please donate whatever they can “every dollar counts”. If you can donate $5 great if you can do more even better. If you can fully sponsor a runner would be amazing. There is also nothing wrong with a runner more then fulfilling their pledges for this great and worthy cause.

Anyone wishing to join the team should please email Ayalaback@gmail.com and anyone wishing to donate should please go to this link: http://www.teamlifeline.org/myteam.php?myid=88.

All I can say simply is “tizku lmitzvos”

The Gradons