7/17/14

We got to MSKCC a few minutes late but BH it didn’t affect our wait time. They took Eli right in for the MIBG scan which took a solid 2 hours. By the end of the scan rightfully so Eli was frustrated but pulled thru as he always does. We got the results of yesterdays blood counts which showed that Eli is neutropenic and therefore needed a dreaded shot to help boost his blood levels. It isn’t fun telling Eli he needs a shot and it took a while to calm him down once that was done. We were then given a the bucket for a 6 hour urine test and headed back to our cousins.

After resting and relaxing we headed back to MSKCC as we needed to drop off the urine test today. Unlucky for us this clown that calls himself president was in NYC and caused a traffic nightmare. So our plans to visit Bubby in Boro Park had to be cancelled until Sunday. We went back to our cousins place and Eli once again had a great time with the cousins. Very few people know hachnasas orchim the way our cousins do and it has made coming to NY as easy as possible.

Friday morning there is one more short scan and then we will head upstairs where Eli will IYH be getting a platelet transfusion as well as possibly also a blood transfusion but that’s hasn’t been decided yet. We will then meet the DR to get the results of the scans beezrat hahsem. Hopefully the day will go smooth and we will be out at a normal hour so we can make it to Lakewood for Shabos.

We have been davening for good results of the MIBG therapy and hopefully we will get exactly that on Friday or whenever we meet the DR. Please continue to have Elimelech Ben Basya in all your tefilos

Special Announcement

For the last few months a group of our close friends have been arranging to join Chai Lifelines marathon taking place in Florida on 2/2/14. They have already 12+ people just on the “team Eli” group along the many others that run for Chai Lifeline. To do so every runner goes through MONTHS of rigorous training which they have all began doing already. This is one of the bigger fundraisers for Chai Lifeline who anyone who has ever needed their services knows how vital they are when a family member is going through a illness. And for those who BH haven’t had a sick family member and beezrat hashem will never have should know that they are simply a lifeline. Always there and always thinking about what they can do to take their chesed to the next level.

Our family will forever be makir tov to them for what they have done for us and continue to do. Every runner that signs up is essentially pledging $3600 to join the CL team. Aside from the training they do they must also raise the $$. On the link below there is a team Eli page which shows how much together the team has raised but you can click on each persons name and donate directly to their pledge. We beezrat hashem hope as a family to be there together with Eli who will be pushed in a wheelchair/stroller by one of the runners during the marathon

I look at this as a insurance plan that hopefully your donation should chas vshalom never be used towards your family or anyone you know but for us its the ultimate lifeline. Again I ask that anyone that can should please donate whatever they can “every dollar counts”. If you can donate $5 great if you can do more even better. If you can fully sponsor a runner would be amazing. There is also nothing wrong with a runner more then fulfilling their pledges for this great and worthy cause.

Anyone wishing to join the team should please email Ayalaback@gmail.com and anyone wishing to donate should please go to this link: http://www.teamlifeline.org/myteam.php?myid=88.

All I can say simply is “tizku lmitzvos”

The Gradons