After relaxing for most of the morning at home and playing with a few friends we decided it was time to get out. We headed to Marina Del Rey but I forgot to give Eli some anti nausea meds so he had a episode when we got there but I or he wasn’t going to let that ruin the day so we got on our rented speed boat and had a blast together as a family which we all really enjoyed.

Once we got home and let Elis stomach rest for a few minutes it was back in the car for a scheduled DR appt at CHLA where Eli was cleared to start the next round of immunotherapy. The good news is that he doesn’t have to be there for this round on Sunday night he can go Monday morning and the even better news is that this round IYH should not cause any pain and he should be able to leave the hospital Friday morning.

As always Elimelech Ben Basya lrefua shelayma bsoch shaar choley yisroel. On WED morning IYH Chaya Mushka Bas Hadasa Shayna will reach a milestone that Eli and all cancer patients look forward to which is the surgery to remove the central line please daven that all should go well and STAY WELL UNTIL 120 AMEN.
A GUT MOED.

We enjoyed a family trip today to a local amusement park where Eli felt up to going on a lot of rides. He had a big boost of energy and was up and about all day going from ride to ride. On the way home we stopped off to eat dinner and Eli ate a lot more then he has in a while. I can’t say it stayed down very long but the effort was there and as long as he keeps heading in the right direction that’s a good thing.

Please continue to daven for Elimelech Ben Basya bsoch shaar choley yisroel. On Sunday night IYH starts the next round of immunotherapy.

Eli had a good night sleep and woke up in a good mood. He relaxed at home until it was time for a family friends birthday party which he enjoyed. Late this afternoon we were invited to a family friends home where they had a puppy show and a reptile show for the kids. Eli and all the kids LOVED it. They got to hold many different types of snakes, tortoises etc. Hopefully Eli will have a good night so that we can have another fun filled day of Chol Hamoed with the family on Monday.

Please as always keep Elimelech Ben Basya bsoch sharr choley yisroel in your tefilos etc. A GUT MOED

The last few days each day Eli has bli ayin hora gained a ton of strength and is almost back to where he was just before immunotherapy. For some odd reason he isn’t eating much but at least he feels good and is in a good mood. The first 24 hours of YT Eli was exhausted and didn’t leave bed at all but once he woke up Friday morning he was in a much better mood with BH a lot of strength.

Other then a possible DR appt this week to clear Eli for the next round of immunotherapy there isn’t much else on the schedule other then to give Eli a fun next few days of Chol Hamoed with the family and build on his strength and good mood.

We hope to enjoy the rest of YT with Elimelech Ben Basya and continue to see him go in the right direction on his way to reaching the ultimate goal of a refua shelayma bkarov. A GUT VOCH. A GUT MOED

BH a better day with Eli continuing to gain strength and eating more then he has lately. Let’s hope that trend continues over YT. Thank you everyone for your tefilos on behalf of Elimelech Ben Basya.

Thank you to the many people that have done so much for us constantly. Words will never be enough to show our true appreciation.
A GUT YOM TOV

Eli showed a lot of improvement today bli ayin hora. He wasn’t as weak as he’s been and he was a little more upbeat. After sitting in the waiting room at the DR for a few hours it was finally our turn. We discussed how Eli has been doing and our worries about his weakness and the DR after looking at him and giving him a basic physical wasn’t worried so BH to that.

The last 12 days and for the next while Eli has needed to be given a daily shot to boost some of his counts. He dreads getting it and I dread giving it but he has gotten used to it so its a little easier. The DR today informed us that part of immunotherapy Eli needs to begin taking Accuttane which generally is used for very bad skin but something in it is apparently good for cancer treatment. Being that this is a relatively new discovery we and the DRs have been fighting with the insurance to approve it which they as of now they haven’t. Based on Elis weight and age he needs a certain milligram that needs 2 pills to get there. The problem with this all is that Eli has been literally tortured with all these meds and treatments and the thought of him having to take this pill now which can make him very moody and dry out his skin twice a day and 2 pills each time is just rough and ridiculously expensive. Not much more to say then genuk shoyn or ad mosai but then again we are doing anything and everything to make sure Eli gets the best care so I guess we shouldn’t complain.

Whatever the case is please have Elimelech Ben Basya in mind that this new drug should not have any negative side effect and only gets us to the ultimate goal of a refua shelayma.

Today was different then the last few days as Eli got out this morning to hang out a family friends house which he really enjoyed. Later in the day he got exhausted and very cranky and moody. Late this evening he ate a few bites which he really hasn’t done in a while so in some areas he is gaining and some areas he has a long way to go. He isn’t himself at all and we hope to get some answers or ideas from the DR on Tuesday on what there is to do to help Eli gain his strength back.

Please continue to keep Elimelech Ben Basya in your tefilos.

Its taking longer then we had hoped for to see Eli back at the strength he was prior to beginning the immunotherapy. We asked many times prior to being discharged how soon after should Eli be himself and they said pretty much right away like not more then the next day. Unfortunately we haven’t been that lucky but hopefully we will see significant improvement on Monday and as the days move on. Eli remains extremely weak and not up to anything.

On Tuesday he goes back for an appointment and hopefully by then Eli should be back on full strength so he can enjoy YT together with the family. We have spoken to the hospital and they said as long as he is drinking and doesn’t have fever its normal. Hard to watch and see but IYH as Eli has always bounced back this will be no different we just need it to pick up speed.

Please have Elimelech Ben Basya bsoch shaar choley yisroel in all your tefilos.

Friday night was not fun as Eli was extremely weak and needed to be carried around. But BH already Shabos morning he had gained some strength and was able to get around the house on his own. He did take a few naps during the day as he didn’t sleep much Friday night. And again by late Shabos evening he finally asked for some light food. So all in all it seems like he is making progress.

This week we hope to get Eli fully back on his feet so he can enjoy YT. There is just one short DR appt this week and IYH nothing until he needs to check back into CHLA on Sunday right after Succos.

I received many calls, emails, texts since RH and these last few days of friends, family and many others that I have never met that have kept Elimelech Ben Basya always in their tefilos and especially over the yomim noraim and all I can say is TIZKU LMITZVOS and IYH it will be a real zchus and help on the road to Elis Refua Shelayma BKAROV. A GUT VOCH

BH this brutal and painful week is coming to a close. After driving the staff at CHLA nuts to let us go home as early as possible we succeeded and Eli was home by 9:30AM. He is extremely weak and not himself at all but they say it is normal and should take a day or so let’s hope they are right. The pain and suffering Eli went thru and what we witnessed this week should be a “kapparah for gantz klal yisroel”.

No idea how Eli or we survived the week or how we will the next 6 rounds but somehow we will. There is nothing harder then watching your child in pain and there isn’t much you can do about it. Sometimes a person is in pain and after a few minutes or an hour it gets better or goes away this brutality goes on and on for 10 hours daily and as the week and weeks progress only gets more painful. Enough said

Please have Elimelech Ben Basya in mind this YK and always and may we be zoche to a GCT and let the world stop having suffering, pain and sick people. We all deserve to see the geulah and have nachas, parnasah and most of all gezunt from all of our families, friends and yidden. Have an easy fast.
A GUT SHABOS
A GUT YOM TOV
GMAR CHASIMA TOVA