The last few days Eli has been doing BH very well and has been in school for half of each day. Today he went for the morning and then headed to CHLA for our scheduled DR appt that was scheduled to begin at 1:30 with blood draws. We saw the DR at 3PM and discussed the scans and how he’s been doing lately and bli ayin hora we are all around very happy.

There is one number that isn’t good and they don’t know why but isn’t cause for any major concern. Its the same number that caused the MIBG treatment to need FDA approval and its still not at all where they would want it to be. We are trying to determine what’s causing that and since Eli has been eating quite a lot and weighs more then he’s ever weighed we are going to be doing TPN every other night instead of nightly and hoping that will help bring that number closer or to where its meant to be.

There is nothing scheduled until after Succos when they will recheck Elis bone marrow and see if there is still disease inside. They are under the assumption that it hasn’t cleared but we have seen miracles and hopefully this will be one of them. It isn’t the end of the world if it isn’t at all but would be better if it is obviously.

Based on all that comes from his blood counts over YT and his bone marrow scan they will then IYH determine what’s next on the treatment. All options will be weighed and it will be probably be a choice of chemo, radiation or immunotherapy or all of the above and it will be stretched out over a long period of time so that there is a constant fight keeping the machla away as much as possible.

On a side note a friend of ours opened a website on behalf of Eli where people can write and share what different zchusim they do or have undertaken on behalf of Eli www.inhonorofeli.com. Thanks so much and tizku lmitzvos to Yossi, Dini and Rachel for spending many hard hours on this project and zchus.

Also anyone that has Instagram should please follow and encourage others to follow Elis page as he wants a lot of followers, enjoys positive comments and loves to get likes on the pictures he posts @Eligradon.

So BH we are very happy with how things have lately been going and with todays appointment. We do as always ask that you continue having Elimelech Ben Basya and all cholim in your tefilos. Wishing everyone a GMAR CHASIMA TOVA A GUT GBENTCHTA YAHR and A GUT SHABOS.

Bli ayin hora Eli made it school for the short day on Sunday and really enjoyed it. Erev RH Eli was visited by his rebbi Rabbi Trainer and was given a lot of the sheets and papers that the rest of his class got and read thru all of them over YT.

Today once again we were happily surprised that BH Elis blood counts climbed and are almost normal and therefore did not require any transfusions so he was in and out in under an hour. After getting home and eating which he’s been doing a lot of lately he decided for the first time this year to try out english class and it worked out very well.

Thursday we will IYH meet the DR and hopefully get an idea and picture of what the plan for the next few months are such as what treatment, when, where etc etc.

Please continue having Elimelech Ben Basya bsoch shaar choley yisroel in your tefilos.

BH Eli felt pretty good over RH and made it to shul for Shofar and was at all the meals eating a lot more then he usually does lately. We hope he will make it to school on Sunday and go as often and as long as he is up to it.
This weeks plan is Monday to go to the infusion center and get any transfusions he may need. Later this week we will meet with the DR and hear what ideas and treatments they plan for the future for Eli.

Bli ayin hora the very good news we got on Erev RH is a complete miracle to put it mildly but there still remains a lot to do and many more months ahead of different treatments.

As we have done until now and will IYH always continue doing is making sure that Elimelech Ben Basya gets the best treatment possible as we continue on the road beezrat hashem to nothing less then a refua shelayma. A GUT VOCH

We got just now the BEST news possible. The CT showed the MAIN MASS IS GONE. Complete miracle to put it mildly. The MIBG showed major improvement.

Please continue davening that the news should always be this good for Elimelech Ben Basya and all cholim.

A GUT YUHR

While we don’t have the scan results yet and we wait and pray that we get good news I would like to take this opportunity to thank the many people who we know about and the many we don’t know about. There has been and endless amount of people and a endless list of favors, tefilos etc etc that have been done and continue to be done on behalf of our Elimelech Ben Basya.

To the many people that have called, emailed, texted sent letters, and all the readers that follow Elis situation wishing us KVT we take this opportunity to wish you and your family “kol mishalos leebecha ltova” and that you should all have a year of only happiness, health, parnassa, and nachas. And like one of my friends writes me every Friday “Keep Smiling” so should be true to everyone. Being upbeat and smiling is the only way to live with today’s nisyonos as kvetching and being sad just makes everyone else around you feel the same and it definitely won’t fix any problems.

Kesiva Vachasima Tova
Malkiel, Bassy, Sori, Eli, Ari and Yaakov

We hope to get results and post them before RH

The frustration today hit a all time high with every nurse and receptionist doing what they do best drink coffee and waste children and their families time. Got to CHLA at 7:45AM to watch the nurse who has a very big job of taking one ounce of contrast and pour it into a bottle of powerade sit on her cell phone for 50 minutes until I lost it on her and she finally gave Eli the drink which needs to be drunk over a 90 minute period to help with the CT scan. While he was drinking the contrast we went to ask his 12:30 appt if they can give him the thyro shield drops he needs prior to MIBG injection. The receptionist said no because “we need to give it to him right before the injection” ok very well understood. When the CT was done Eli went home since there was a few hours in between appointments.

When Eli got back at 12:15 for his 12:30 appt they once again had him sit there doing nothing instead of giving him the drops so that the 45 minute in between drinking the drops and injection can start. Finally at 1:15 they came out to give him the drops only to make up a new story that we were supposed to bring the drops from our house which after having 6 MIBG injections we never once brought. So here we go again they need to order it from the pharmacy which took an additional 45 minutes. So instead of being there from 12:30-1:15 we were there for closer to 3 hours all in the name of laziness on the part of the staff at CHLA.

Anyway the CT scan is done the pre MIBG scan is done and IYH on Wed at 8AM we are back for a GI appointment followed by the MIBG scan at 11AM. The scan takes about 2 hours and we hope to have good results before YT starts.

We are looking forward to ending off the year with good news and to start the new year on a good start with a year of only besuros tovos. Please continue having Elimelech Ben Basya and all cholim in all your tefilos.

Bli ayin hora for the first time in many months Eli went today to the infusion center to check his blood and get any transfusions that he needs. BH we got good news NO TRANSFUSIONS NEEDED and instead of spending 6-9 hours there Eli was out in a hour which is how long it takes to draw the blood and get results.

Over the last few days Eli has been resting and regaining strength. Being on IV antibiotic 4X a day hasn’t been easy to do but it seems beezrat hashem to be doing what its meant to do as he seems to be feeling a lot better.

This past Shabos Eli got out with us to join in a close family friends Bar Mitzva of Michael Bess. We owe for many things hakaras hatov to his parents and grandparents but a special hakaras hatov to his father Yoel Bess who has set up and maintained this website www.eligradon.com on behalf of Eli since day 1. Our brocha to Michael and Yoel and family is that every Brocha that was received this past Shabos should be mekuyam.

Tuesday and Wednesday IYH we will be back in CHLA for scans. These are by far the most important scans Eli has had since being diagnosed. We daven that Elimelech Ben Basya should get only very good results as we continue on this very long road to a refua shelayma bkarov.

After a sleepless horrible night with a careless and a almost harmful nurse there is good news ELI IS HOME. Its been a very trying and at points scary 6 days but BH things are ok now. Eli will need to continue IV antibiotic 4 times a day for the next 10 days but as hard as that is anything beats being in the hospital. As we have seen so many times bli ayin hora the second Eli walks in the door of the house he’s a different happier person and today was no different.

We look forward beezrat hashem to relaxing at home for the next few days before we have a busy few days next week. Monday is back at the infusion center for any transfusions that Eli may need which lately he’s needed blood and platelets at least once a week. Tuesday is CT scan in the morning followed by MIBG injection in the early afternoon and then Wednesday is MIBG scan.

Elimelech Ben Basya lrefua shelayma bsoch shaar choley yisroel amen.

Bli ayin hora today saw more improvement and the hope is that they will discharge Eli sooner then later. Eli will need to get 3-4 times a day antibiotic IVs to complete the 14 day cycle. Other then that his blood counts are very low as far as his ANC (neutropenic) which help fight off germs etc so until that improves he will be relaxing and beezrat hashem regaining strength at home.

Last night Eli missed an opportunity to have dinner with Doc Rivers (LA Clippers coach) arranged by Chai Lifeline but he was presented today with a present from him instead a autographed basketball from him and it hasn’t left his bed since getting it. Later in the day we had quite a few entertaining visitors which Eli really enjoyed.

Please continue having Elimelech Ben Basya bsoch shaar choley yisroel in all your tefilos.

BH all continues to go well. Although Eli is still in an ICU room he isn’t there because he needs an ICU room he’s there because they don’t have any available beds anywhere else. We are hoping that all continues to go well and that they will let Eli leave the hospital and continue the IV antibiotics at home to finish the 14 days needed at some point sooner then later.

Next week Tuesday and Wednesday Eli is scheduled to be in CHLA for MIBG injection, MIBG scan and CT scan. Based on the results of those scans the DRs will decide what to do next on the treatment plan.

Please as always continue having Elimelech Ben Basya in all your tefilos.