3/11/13

Eli BH slept in pretty late today and woke up happy and hungry. He ate a nice amount and finally at about noon it was time to go back to CHLA to have his blood tested to see if his blood counts were well enough to begin chemo. Not surprisingly once again the doctors were wrong and his counts were a lot better then what they needed in order to begin but then uh oh… We forgot to tell you that Eli needed to submit a 12 hour urine test prior to starting this round of chemo. To say the least we were not happy. The lack of communication was very apparent and this one really hurt because now the earliest we can check in if they have a bed is Tuesday morning which means we will be stuck in CHLA for shabos.

Trying not to be to upset but its not easy. The last place anyone wants to be is CHLA ever and for sure not on shabos especially when it shouldn’t be. But like everything there is someone else that makes these decisions and we know it is for the best and hopefully we will get a sign to show us that.

The one thing that almost always keeps us going is the smile and easy going on Elimelech Ben Basyas face which again today he did not disappoint. Hopefully Tuesday morning will be as smooth as possible and there will be a bed as early as possible and this week and chodesh Nisan will only bring nachas, gezunt and especially refua to Eli and all cholim.

Special Announcement

For the last few months a group of our close friends have been arranging to join Chai Lifelines marathon taking place in Florida on 2/2/14. They have already 12+ people just on the “team Eli” group along the many others that run for Chai Lifeline. To do so every runner goes through MONTHS of rigorous training which they have all began doing already. This is one of the bigger fundraisers for Chai Lifeline who anyone who has ever needed their services knows how vital they are when a family member is going through a illness. And for those who BH haven’t had a sick family member and beezrat hashem will never have should know that they are simply a lifeline. Always there and always thinking about what they can do to take their chesed to the next level.

Our family will forever be makir tov to them for what they have done for us and continue to do. Every runner that signs up is essentially pledging $3600 to join the CL team. Aside from the training they do they must also raise the $$. On the link below there is a team Eli page which shows how much together the team has raised but you can click on each persons name and donate directly to their pledge. We beezrat hashem hope as a family to be there together with Eli who will be pushed in a wheelchair/stroller by one of the runners during the marathon

I look at this as a insurance plan that hopefully your donation should chas vshalom never be used towards your family or anyone you know but for us its the ultimate lifeline. Again I ask that anyone that can should please donate whatever they can “every dollar counts”. If you can donate $5 great if you can do more even better. If you can fully sponsor a runner would be amazing. There is also nothing wrong with a runner more then fulfilling their pledges for this great and worthy cause.

Anyone wishing to join the team should please email Ayalaback@gmail.com and anyone wishing to donate should please go to this link: http://www.teamlifeline.org/myteam.php?myid=88.

All I can say simply is “tizku lmitzvos”

The Gradons