4/18/13

Since Eli was diagnosed in Dec its been our goal always to do what makes him happy and to try to keep him eating and as strong as possible. Since the surgery nearly 2 weeks ago which apparently is normal for such a long procedure Eli has been extremely weak and even though he’s eating and moving around a little he gets exhausted very quickly. Its been a rough 4+ months and a rough past few weeks and its sadly only about to get rougher. This round he is about to start really took everything out of him last time he had it and had painful side effects.

We hope to give him an enjoyable relaxed shabos and Sunday before he needs to check in on Monday to CHLA. Between him being weak, having a terrible stomach and just simply not looking well we are doing everything we can to at least lift his spirits which for the first time has been not that good lately either. Being that he is having a very hard time walking especially up and down stairs I have been carrying him and now as a result have completely thrown my lower back out of place so BH Bassy has fully come to the rescue to do double the work she usually does.

We need to help get Elimelech Ben Basya back on track in many aspects and hopefully the few days we still have before next round we will accomplish that and we are hoping to wake up in the morning with Eli and myself feeling a lot better so we can all continue and do what’s best for Eli on this long hard road to his Refua Shelayma.

Special Announcement

For the last few months a group of our close friends have been arranging to join Chai Lifelines marathon taking place in Florida on 2/2/14. They have already 12+ people just on the “team Eli” group along the many others that run for Chai Lifeline. To do so every runner goes through MONTHS of rigorous training which they have all began doing already. This is one of the bigger fundraisers for Chai Lifeline who anyone who has ever needed their services knows how vital they are when a family member is going through a illness. And for those who BH haven’t had a sick family member and beezrat hashem will never have should know that they are simply a lifeline. Always there and always thinking about what they can do to take their chesed to the next level.

Our family will forever be makir tov to them for what they have done for us and continue to do. Every runner that signs up is essentially pledging $3600 to join the CL team. Aside from the training they do they must also raise the $$. On the link below there is a team Eli page which shows how much together the team has raised but you can click on each persons name and donate directly to their pledge. We beezrat hashem hope as a family to be there together with Eli who will be pushed in a wheelchair/stroller by one of the runners during the marathon

I look at this as a insurance plan that hopefully your donation should chas vshalom never be used towards your family or anyone you know but for us its the ultimate lifeline. Again I ask that anyone that can should please donate whatever they can “every dollar counts”. If you can donate $5 great if you can do more even better. If you can fully sponsor a runner would be amazing. There is also nothing wrong with a runner more then fulfilling their pledges for this great and worthy cause.

Anyone wishing to join the team should please email Ayalaback@gmail.com and anyone wishing to donate should please go to this link: http://www.teamlifeline.org/myteam.php?myid=88.

All I can say simply is “tizku lmitzvos”

The Gradons