We are looking forward to Shabos after a unexpected pretty eventful week at home. Eli was in CHLA Wed morning for a GI appointment which he didn’t get to see the DR for. They “punished” us for coming at 8:55 instead of 8:40 by telling us we are going to be the last appt of the morning which would be at 12:30. Even after explaining them that the reason we were “late” was because Eli had a vomiting and diarrhea episode that morning they didn’t pretend to care so we said bye and left.

Thursday morning Eli was back at CHLA for transfusions where he got both blood and platelets and during then was seen by the GI DR for the literally 45 SECOND appt. After that Eli headed to his regular DR for a appt. It was a very hard and long day at CHLA from 9:30AM -6:15PM but Eli together with his Bubbys help did it like a champ.

This coming week on Tuesday IYH they will be giving Eli back some more of his own stem cells to hopefully boost his blood levels after the MIBG therapy. It is done outpatient and it will probably followed by transfusions once again. There isn’t a clear treatment plan after that other then at some point later in the month of SEP they plan on doing scans to decide on what further treatments should be scheduled.

Please continue as always having Elimelech Ben Basya in all your tefilos. A GUT SHABOS