9/8/14

The last week or so Eli has been vomiting suddenly without the normal nausea that usually comes first. He also has been having to use the bathroom more often then he has needed in the past. Today we were at CHLA from 9AM to 4PM for scheduled transfusions which he received both blood and platelets. While we were there they took an x-ray of his abdomen to see if anything looked out of the ordinary that maybe causing the vomiting and extra bathroom visits and BH all looked ok. They think this maybe the result of the TPN and may possibly change some of the contents accordingly.

They have for now scheduled a CT scan for 8/23 and we are waiting for when they will schedule the MIBG scan. They won’t be doing bone marrows as they just did that in NY. Other then that there isn’t much on the schedule until we get the results other then probable weekly blood and platelet transfusions.

In the meantime please as always continue having Elimelech Ben Basya bsoch shaar choley yisroel in all your tefilos.

Special Announcement

For the last few months a group of our close friends have been arranging to join Chai Lifelines marathon taking place in Florida on 2/2/14. They have already 12+ people just on the “team Eli” group along the many others that run for Chai Lifeline. To do so every runner goes through MONTHS of rigorous training which they have all began doing already. This is one of the bigger fundraisers for Chai Lifeline who anyone who has ever needed their services knows how vital they are when a family member is going through a illness. And for those who BH haven’t had a sick family member and beezrat hashem will never have should know that they are simply a lifeline. Always there and always thinking about what they can do to take their chesed to the next level.

Our family will forever be makir tov to them for what they have done for us and continue to do. Every runner that signs up is essentially pledging $3600 to join the CL team. Aside from the training they do they must also raise the $$. On the link below there is a team Eli page which shows how much together the team has raised but you can click on each persons name and donate directly to their pledge. We beezrat hashem hope as a family to be there together with Eli who will be pushed in a wheelchair/stroller by one of the runners during the marathon

I look at this as a insurance plan that hopefully your donation should chas vshalom never be used towards your family or anyone you know but for us its the ultimate lifeline. Again I ask that anyone that can should please donate whatever they can “every dollar counts”. If you can donate $5 great if you can do more even better. If you can fully sponsor a runner would be amazing. There is also nothing wrong with a runner more then fulfilling their pledges for this great and worthy cause.

Anyone wishing to join the team should please email Ayalaback@gmail.com and anyone wishing to donate should please go to this link: http://www.teamlifeline.org/myteam.php?myid=88.

All I can say simply is “tizku lmitzvos”

The Gradons