Eli had a very nice and relaxed Shabos and we look forward to that continuing all this coming week. Aside from a scheduled DR appointment on Monday and possibly a blood transfusion there is nothing else on the schedule.
Please keep Elimelech Ben Basya in mind in all your tefilos. A GUT VOCH
BH Eli had a good full day at school “halevay vayter”
A GUT SHABOS
Overall Eli had a good day today even though he didn’t last the full day in school as he is still recovering from the soreness that the bone marrow procedure left him with. Beezrat hashem he will wake up in the morning pain and sore free.
BH Elimelech Ben Basya as always is smiling and happy. Please keep him in mind in all your tefilos.
The day started very early today and we were in CHLA before 6:30. The procedure started at 7:45 and took a few long minutes and shortly after that Eli was discharged and was home by 9:15AM. He spent the rest of the day at home trying to get back to himself but remains tired and slightly sore.
BH we are done this round of scans and hope to continue having the same results always. There is nothing else on the schedule for now other then a DR appt on Monday and then round 5 of immunotherapy scheduled to start in about 10 days.
Elimelech Ben Basya lrefua shelayma.
BH we received good news this morning that the CT scan was all clear. Both the CT scan and MIBG scan at diagnosis we not clear and now they have been clear for the last few scans and beezrat hashem they will always be that way. Eli spent a long and tiring day in school today but he lasted the full day.
Early Wednesday morning we will return to CHLA for the bone marrow procedure. It is a very quick procedure but since it involves general anesthesia there’s no eating or drinking prior. The only expected side effect is that Eli will be sore for the remainder of the day and possibly a little the following day. The results of the test generally take a few days.
Please continue having Elimelech Ben Basya in all your tefilos
The day started early and went as smooth as possible. After drinking the special drinks like a champ Eli went in for the CT followed by an echcardiogram. BH both were done before 11:15AM and the DR appt after that was cancelled.
Eli stayed home the rest of the day but IYH will be in school for a full day on Tuesday. We did not get results of the CT yet but we will hopefully have them at some point tommorow. Wednesday morning is the bone marrow procedure.
Please as always keep Elimelech Ben Basya in mind in all your tefilos.
Eli didn’t have the best nights sleep because of the side effects of the accutane which causes him to itch. But BH he woke up in a good mood and went to school. Once he was home he didn’t want to do much other then relax.
We have a full schedule on Monday in CHLA starting at 7:30AM with a drink to help them read the CT scan better which doesn’t taste good and needs to be drunk over a 2 hour period. Once that’s done Eli will have a echocardiogram. IYH we hope since its an early CT to have the results by the end of the day of not on Tuesday.
Beezrat hashem all will continue to head in the right direction for Elimelech Ben Basya bsoch shaar choley yisroel.
BH Eli made it to shul and enjoyed Shabos to the fullest as he always does. We look forward to this continuing IYH all week.
There is a lot on the schedule this week starting early Monday with a CT scan followed by a echocardiogram and then a DR appt and then on Wed they will give Eli general anesthesia for the bone marrow procedure.
Please continue to daven for Elimelech Ben Basya that he should continue only having clear and clean results from all his scans as we help him reach the ultimate goal of a refua shelayma bkarov. A GUT VOCH
BH all went very well today and Eli had a great day in school. “Halevay vayter”
A GUT SHABOS
At about 11AM today we finally got the email we were waiting 24 hours for from the DR. BH the MIBG scan was completely clear and all the previously infected areas are negative for disease.
Eli lasted a full day in school for the first time in nearly 2 weeks and beezrat hashem that will be the same on Friday. The next scan in on Monday early morning which is the CT scan followed by a echocardiogram and a DR appt. On Wed is the bone marrow procedure.
BH for these results and we thank all the people who have and continue to have Elimelech Ben Basya bsoch shaar choley yisroel in their tefilos and we look forward to continuing having only good reports.
For the last few months a group of our close friends have been arranging to join Chai Lifelines marathon taking place in Florida on 2/2/14. They have already 12+ people just on the “team Eli” group along the many others that run for Chai Lifeline. To do so every runner goes through MONTHS of rigorous training which they have all began doing already. This is one of the bigger fundraisers for Chai Lifeline who anyone who has ever needed their services knows how vital they are when a family member is going through a illness. And for those who BH haven’t had a sick family member and beezrat hashem will never have should know that they are simply a lifeline. Always there and always thinking about what they can do to take their chesed to the next level.
Our family will forever be makir tov to them for what they have done for us and continue to do. Every runner that signs up is essentially pledging $3600 to join the CL team. Aside from the training they do they must also raise the $$. On the link below there is a team Eli page which shows how much together the team has raised but you can click on each persons name and donate directly to their pledge. We beezrat hashem hope as a family to be there together with Eli who will be pushed in a wheelchair/stroller by one of the runners during the marathon
I look at this as a insurance plan that hopefully your donation should chas vshalom never be used towards your family or anyone you know but for us its the ultimate lifeline. Again I ask that anyone that can should please donate whatever they can “every dollar counts”. If you can donate $5 great if you can do more even better. If you can fully sponsor a runner would be amazing. There is also nothing wrong with a runner more then fulfilling their pledges for this great and worthy cause.
Anyone wishing to join the team should please email Ayalaback@gmail.com and anyone wishing to donate should please go to this link: http://www.teamlifeline.org/myteam.php?myid=88.
All I can say simply is “tizku lmitzvos”
The Gradons