Author Archives: gradonadmin

11/13/13

At 9:30AM Eli headed to CHLA for his MIBG scan which began on time at 10AM and took about 90 minutes. Eli was a champ and didn’t move so they can get all the images required. They then sent him upstairs for some quick blood work to see if Elis blood levels are up to par to begin accutane. On Monday the blood levels weren’t well enough so they repeated that test today. BH Elis labs are now good enough to go ahead with the accutane. The good news is that being he didn’t start on Monday and they want it completed before round 5 of Immunotheray the next round which is a back to back one won’t begin until IYH the first week of December which will allow Eli to be home for most of Chanuka.

I was hoping to receive the scan results today but wasn’t so lucky. I hope to have them sometime on Thursday. After being tied down to the table for the scan today Eli celebrated with a steak from Shilos which was a present he received from a family friend. We hope Eli will be in school for a full day on Thursday for the first time in a while.

Looking forward to continue sharing only besuros tovos for Elimelech Ben Basya.

11/12/13

Eli didn’t have the best night sleep so we kept him home. He had to be anyway at CHLA at 12:45 for his MIBG injection. The remainder of the day he spent at home and visiting his Bubby and Zaidy.

On Wednesday is the MIBG scan which he will IYH have at 10AM and takes roughly 90 minutes of laying very still while a machine scans every bone in his body to beezrat hashem make sure its clear. We hope to get results same day but that’s not always or usually the case.

Please continue davening for Elimelech Ben Basya that all should be good, easy and clear and that we should have only good results.

11/11/13

Although today was a short scheduled day in school it was good to have Eli back into routine. He was home after dismissal at 12:30 and headed to CHLA for his 2:30 appt. After some explaining and confusion they realized they had us down wrong and the MIBG injection isn’t until Tuesday but today was a DR appt to make sure Elis blood levels were well enough to do the next round of accutane. BH all went well and Eli is doing the accutane.

IYH Eli will have a MIBG injection on Tuesday followed by the scan on Wednesday followed by a CT scan early Monday morning. The bone marrow procedure hasn’t been scheduled yet.

Beezrat hashem all will go smoothly and well for Elimelech Ben Basya and we will be able to continue on the road to a refua shelayma.

11/10/13

Eli had a mostly quiet relaxed day at home in preparation for the coming week. We look forward to having Eli in school for the full shortened day on Monday. After that he has a 2:30 CHLA appointment for a “MIBG injection” which shouldn’t take more then a few minutes. Tuesday is the actual MIBG scan which is when Eli has to lay in one place and basically not move for 90 minutes while they do a full body bone scan. The injection makes things a lot clearer during the scan.

Please continue having Elimelech Ben Basya in all your tefilos.

11/9/13

We had a very relaxed nice shabos and it was very good for all of us to sleep in our beds undisturbed. Eli felt very good and showed a very nice amount of strength and walked a decent amount. We look forward to helping gain as much strength this week and the next few while he is at home.

This coming week begins with the next set of scans. While BH they are not for the most part painful they are long and stressful between waiting for them to begin to waiting for the IYH good results.

Please continue to daven that all should continue going well for Elimelech Ben Basya bsoch shaar choley yisroel. A GUT VOCH

11/8/13

Eli was home before 11AM and is looking and feeling very good. Its good to be home and beezrat hashem we will stay home for 3+ weeks until next treatment.

Elimelech Ben Basya lrefua shelyama. A GUT SHABOS

11/7/13

I can’t properly thank everyone who had in mind Eli this past week in their tefilos etc. After checking in to the hospital Sunday night and being warned last week from the DR and the DR on call that this week will definitely not be easy or pleasant, once again BH they were wrong. Each of the 4 days of round 4 of 7 started on time at 10AM and ended at 8PM. Not once did they need to slow it or stop it. Bli ayin hora Eli did not suffer an ounce of pain and on the contrary he was never in a better mood in the hospital then he was this week since being diagnosed.

Like last time the reason I was very vague each night was for the simple reason of not wanting any ayin horas.

There were so many people this week that made Eli feel special. Of course Bikur Cholim for arranging blood for Eli which he needed. They also brought us non stop food for us and Eli. Thank you so much Rabbi Ten and your team. Then there was Chai Lifeline who brought Eli some food all the way from Pico when he decided that’s all he wants and he really ate every last bit. Usually Eli doesn’t eat at all in the hospital but BH this week he was eating non stop.

Then there were many visitors which Eli appreciated every single last one. From family members to family friends it really kept Elis spirits and mood positive all week. There was a organization that came around this week that gave every single child with cancer a choice of either a IPOD or a laptop. Eli picked a IPOD and he’s been busy with it ever since.

While BH this weeks treatment is over we still have a lot lined up over the next month. This coming week Eli will have a full set of scans CT, MIBG and Bone marrow the following week. The last Sunday of this month Eli will check back in to CHLA for rounds 5 and 6 of immunotherapy for 2 consecutive weeks of Sunday thru Friday.

Please continue having Elimelech Ben Basya in all your tefilos. We look forward to being discharged Friday morning and being home before noon and having a much needed normal comfortable undisturbed sleep IYH.